The ICF - Effect

Dementia is the most common psychiatric illness in the ageing population. The project called "The ICF as reference for the evaluation of intervention studies in dementia - ICFeffect" conducted under the auspices of  the high-profile "Leuchtturm" project Dementia funded by the Germany Ministry of Health was completed in 2010. The aim of this cooperation between the Department of Primary Medical Care/Centre for Psychosocial Medicine at the University Medical Hospital Hamburg- Eppendorf and the ICF Research Branch was to analyze the extent new instruments are necessary to detect patients' and caregivers' relevant endpoints in intervention studies involving persons with dementia of the Alzheimer's type (PwADT).

In order to achieve this aim the following steps were taken:

  • Systematic Literature Review: The databases Medline, Embase, Psycinfo, Cinahl and Pedro were searched to identify pharmacological and non-pharmacological intervention studies published from 2006-2008.
  • Personal Interviews: Up to 8 semi-structured face-to-face interviews were performed with PwDAT in the first stage of the disease. Up to 23 family members of PwDAT were interviewed. The focus of the interviews were problems in daily living and challenges caused by the illness.
  • Linking into the ICF: Goals and outcome measures of intervention studies identified in the literature review as well as problems and challenges identified during the personal interviews were linked to the ICF and compared.

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